That's the point. Nothing gets stuck anymore! ππππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Actually after writing about my biobidet, I have wondered if there are people on here who would love one but haven't been able to get one, things seem such a postcode lottery. xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Love my bio bidet too.
Best wishes
MaryComment
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My council OT's boss felt sorry for me and organized a free one. I wasn't entitled as my current home has limited use. Hopefully moving to a purpose built one bed bungalow freshly decorated. Life is strangely good at the moment. ππππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Wow that sounds a lucky break. You will miss your lovely garden mural though xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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yeah matthew. what will happen to your house?when i can think of something profound i will update this.Comment
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Great news Matthew. Good luck with the move.Originally posted by matthew55 View Post
Iβm going to do this even if it kills me!Comment
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I will have the photos. I'm taking my tubs ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I spotted a typo there Mary.Originally posted by Mary C View Post
Don't you mean Best washes ?? πππ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Wow, that's supery dupery good news Matthew - life in a bungalow is so much easier you won't know yourself. Does it have a full, level access wet room? xxOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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No idea but hopefully the OT will ask for one πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Will you have to go on a waiting list Matthew? ..If so hope you get an offer of a bungalow soon.
Best wishes
MaryComment
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I'm a priority apparently with 500 bonus points. Plus a housing officer is doing it all for me. Having ASL/MND has compensations it seems. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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As Brucie used to say bigger points means bigger prizes
Husband Albert diagnosed PMA Feb 21Comment
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That's ab fab news about a bungalow Matthew... its so much easier being on one floor.The gnomes will love it !π₯³xComment
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