Last night I took pills and woke up at one, two, three and gave up, and got up, at four. My nose wouldn't clear so at eight I was online asking my GP for help. Since then my nose has completely cleared and I am mellow again. It's always worth it to wait. ππππ€xxx
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matthew55 And wasn't the sunrise beautiful! I was awake too, pity we can't talk, could have phoned each other for company ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Don't know if it helps, but, nursie told Dad to prop up with pillows to help sleep because of being blocked up (in his case throat filling with secretions), so not lying flat... but I bet you all know that already....Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.
Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png
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Ellie your response to Matthew made me smile but in a serious note could your eyegazer actually make a phone call? can your voice be heard down the phone? - I ask as I have organised Albert to do the Voice Banking, as yet hes not showing any interest and is not doing it - probably because his speech is ok at the mo but who knows how much longer forHusband Albert diagnosed PMA Feb 21
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Originally posted by Suefromwakey View Post... could your eyegazer actually make a phone call? can your voice be heard down the phone?
Some tablets and PCs have a SIM card drive, or there are adapters which allow a SIM to be used in a PC, so he could text or phone that way. xx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by matthew55 View PostI sleep on four goose down pillows! In all seriousness of my nose don't work my throat gets blocked and I can't breathβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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