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Chest banding

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    Chest banding

    Can anyone advise me. I was diagnosed just over a year ago with limb onset mnd. Since before this I was experiencing a tight band feeling around my diaphragm front of ribs below breast area. My neurologist and MND nurse assure me that this is not a symptom of MND. They have tried me with sativex Baclofen omeprazole. Nothing helps. Not painful just very tight. It is found in ms patients but I don't have that. Does anyone else have this and if so did anything help? Thank you

    A warm welcome to the forum, Kath.

    I can get spasms in my intercostal muscles but I wouldn't equate it to chest banding, in my case at least.

    It did not happen until those muscles were affected, ie, became weak.

    Sorry I can't help you on this issue.

    Sativex: you're 'lucky' to have been given a chance to try it, may I ask if you're in Scotland?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.



      Hi Kath, welcome to forums. I’m sorry that I have no experience of that feeling but hope that it eases for you, Lynne
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Thank you both. Yes Ellie I am in Scotland


          Welcome aboard our merry ship Kath Bell. The food is liquid and the entertainment world class. Port Out, Starboard Home. πŸ˜πŸ˜πŸ˜˜πŸ€—xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx