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    Gurgling noises in throat

    Good morning
    This week brings more changes in the form of gurgling sensation and noise in throat coming from further down.I am aware my swallow is more affected but just wondering if others have this problem.
    Currently eating normal diet but can feel swallow is changing now .PEG being fitted 16 th June .Poor appetite in last few months .
    My stomach feels full of wind too and increased need to pass wind noticed too.

    The throat gurgle is audible to others too! (Hope flatulence isnโ€™t ๐Ÿ˜‚)Donโ€™t suppose any tips or just have to get used to it?
    Best wishes
    Mary

    #2
    oh mary you poor thing.

    stephen is fine but his swallow is very good apparently. think pulling on those fags for so long has helped. guess some would argue that one.

    im sure matthew spoke about noises in his throat. i know he spoke of wind but knowing guys they couldnt care less who hears them. you should just go with the flow if it makes you feel better.

    lots of love and hugs
    denise

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      #3
      come to think of it mary stephen said that the peg food gives him wind. but think he's always had wind so.........!

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        #4
        My burps rarely make it all the way up. First few times is very odd. Even rarer is stomach contents arriving at the back of my throat. Plus I have a kind of panic attack when I can't breathe through my nose during which noises, throat closures and coughing all happen. Baclofen and nasal spray saves me. MND the gift that never stops givng, aren't we the lucky ones. ๐Ÿ˜๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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          #5
          Hi Matthew,
          Anything that affects breathing is horrible and no wonder you panic.Itโ€™s hard to talk yourself into relaxing when you have attacks like you describe.I feel for you being alone when you feel like that.I seek reassurance from my husband Steve when I get anxious plus I pray.
          Hope today is a good day for you.
          Best wishes
          Mary

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            #6
            Like everything else it's getting used to it. Happy Days ๐Ÿ‘๐Ÿ˜๐Ÿ˜๐Ÿ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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              #7
              As sister used to tell me, wherever you are, wherever you, don't be afraid let the wind blow free. Can't blame anyone now that enjoys a fag. I was thinking of taking up again - or something else.

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                #8
                Sadly I can't smoke anything anymore ๐Ÿ˜ข๐Ÿค”๐Ÿง๐Ÿ˜ xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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                  #9
                  This thing stinks

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                    #10
                    Mary, could it be phlegm/secretions responsible for your throat gurgles? That can happen because of swallow issues, weakening cough or stomach reflux. If you take medication or think it could be gastric reflux, ask your nurse or GP if you should talk a 'stomach liner", a PPI.

                    Did your wind issue coincicide with you starting NIV by any chance? Sometimes if it's on a high-ish setting or if you're not entirely at ease with its use, you can end up gulping air and... what goes in, must come out ๐Ÿ˜‰ If your swallow has changed, that could also increase in the amount of air you take in overall.

                    An underrated benefit of having a feeding tube is the ability to use it as an air vent ๐Ÿ˜„

                    Love Ellie.
                    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    โ€‹

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                      #11
                      Thanks Ellie,
                      The gurgling throat started this week .I think it may be my swallow that is changing gradually.It feels like wind in my throat and when I sit quietly I can hear the sound it makes.
                      I donโ€™t think itโ€™s gastric reflux though I have got some prescribed medication for that given months ago when I was getting a tickly throat.It made no difference so after a few months I stopped taking it.
                      I guess I donโ€™t want to take lots of medications as know as I get worse there will be a need to add more pills into the mix.
                      Also it could be the NIV but unsure how to check the setting.I can ring the hospital respiratory team and ask them the setting and if they think it needs altering.
                      As usual Ellie you are so kind to share with so many of us what you have learnt living with MND for so long.Thankyou.
                      Sat in the garden enjoying listening to the birds..what lovely weather we have had.
                      Best wishes
                      Mary

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                        #12
                        Another thought Mary, are you able to give a good cough? xx
                        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        โ€‹

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                          #13
                          Hi Ellie
                          Yes I can give a good cough though not as strong as in past.Itโ€™s part of the deterioration I guess of swallowing I mentioned to district nurse who rang but she didnโ€™t really have any ideas about gurgling sound .
                          Goodnight and thanks for trying to help.
                          Best wishes
                          Mary

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