Just been to my local Hospital for measuring up a new neck brace that hopefully will give me a different view of life. It was amusing as he was deaf. ππππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Thatβs good xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Blimey Matthew, that took a while - hope you're not waiting long for the finished product. π€π€π€ that it supports your head properly and rids you of your pain, finally. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Hi Matthew, you really do seem to be cracking on with getting the help you need now.Hope it makes you more comfortable.
Best wishes
MaryComment
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Yes lots of things falling into place. Well done you πwhen i can think of something profound i will update this.Comment
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