Announcement

Collapse
No announcement yet.

Good days Bad days

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Good days Bad days

    Even with the greatest mood enhancing drugs bad days are sadly inevitable. Thankfully the days length remains constant. Have you guessed which sort of day I'm having yet? .πŸ€”πŸŒ§οΈπŸ˜‰πŸ§πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    The rain cloud suggests not so good unless of course you need rain then it would be great.

    foggy here. I'm trying to make the best. 😚

    Comment


      #3
      I'd say not so good Matthew...but not irretrievable because you can see the glimmer of tomorrow's sunrise?
      Talking sunrise, I should have applied to the Early club today...4am! Humidity here. X

      Comment


        #4
        Whatever day you are having Matthew, think about tomorrow because then today will be behind you.

        Hugs
        I’m going to do this even if it kills me!

        Comment


          #5
          yes hugs Matthew x
          Diagnosed July 2020, ALS bulbar onset.

          Comment


            #6
            Hope you have a good day Matthew.
            Sun shining here and determined to make the best of a fresh day.
            Best wishes
            Mary

            Comment


              #7
              Specially for my bud...

              You do not have permission to view this gallery.
              This gallery has 1 photos.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

              Comment


                #8
                We all have good & bad days πŸ₯΄ I had a shocker yesterday πŸ€¦πŸΌβ€β™€οΈ But this morning up early full of the joys πŸ€—
                Janette x

                Comment


                  #9
                  Good for you Janette. Don't let MND win! xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    #10
                    You wonderful people have turned my bad day into a good day. πŸ˜πŸ˜˜πŸ€—πŸ˜xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                    Comment


                      #11
                      So glad your day is getting better Matthew. πŸ™‚πŸ˜˜ and that today is good for you Janette πŸ‘

                      My day started off a bit rubbish. Im worried about my Mum and frustrated that MND prevents me caring for her. I had an upset tummy so Stuart couldn't leave me to check on her so we had to call on other help. Shes resisting the care she needs, which is really typical of old people...I think I'd be the same.

                      A phone call from my GP cheered me up as blood tests show I can come off daily anti coagulation injections( I look like a pin cushion !) and go onto tablets . Yipee its amazing what we celebrate 🍾 .

                      Sorry I've hijacked the thread. I hope everyone's day is going well.
                      Love Debbie x

                      Comment


                        #12
                        As hi jackers go you Deb are always welcome πŸ˜πŸ˜˜πŸ˜πŸ€—xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                        Comment


                          #13
                          Originally posted by Deb View Post
                          So glad your day is getting better Matthew. πŸ™‚πŸ˜˜ and that today is good for you Janette πŸ‘

                          My day started off a bit rubbish. Im worried about my Mum and frustrated that MND prevents me caring for her. I had an upset tummy so Stuart couldn't leave me to check on her so we had to call on other help. Shes resisting the care she needs, which is really typical of old people...I think I'd be the same.

                          A phone call from my GP cheered me up as blood tests show I can come off daily anti coagulation injections( I look like a pin cushion !) and go onto tablets . Yipee its amazing what we celebrate 🍾 .

                          Sorry I've hijacked the thread. I hope everyone's day is going well.
                          Love Debbie x
                          Sorry to hear about your mum it’s hard isn’t it when you can’t help 😒 but good news about your blood tests πŸ‘ xx
                          Janette x

                          Comment


                            #14
                            I'm the same Debbie - it breaks my heart that I can't physically help my parents, who also will not even entertain getting a cleaner, let alone any other help.

                            Good news re no more injections. Hope your tummy has settled down by now.

                            I wish your mum well.

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              #15
                              Thanks for the kind words Ellie, Janette and Matthew. There's always someone to understand on here.❀

                              I am going to focus on what I can do to help Mum and not dwell on what I can't! The funny thing is that while I was upset this morning our online food shop arrived and we later realised it wasn't our shopping at all. 🀣 The supermarket told us to keep it and they would send ours tomorrow.

                              Well Stuart is a happy boy ! Theres 🍰πŸͺ🍩🍫πŸ₯§πŸ•πŸŒ­ and even 🍺 He deserves a treat as long as he doesn't get used to it !

                              Heres to a good day for us all tomorrow,
                              Love Debbie x

                              Comment

                              Working...
                              X