Hi everyone,
First time poster. I care for a friend with MND and he's had a PEG for 6 months. I know everyone will be different, but it would be really interesting to see how much people are taking through the PEG in a day. Now that it's much warmer, we will need to increase his water intake but are worried about the amount of liquids in total - perhaps the benefits will outweigh the negatives.
A normal day constitutes 1 litre of water and 1.2 litres of Ensure. Nil by mouth. (He was prescribed one bottle of ProCal per day too, but that was making him feel a little sick so we've cut that out).
For digestion reasons we were experimenting with increased water intake (about 1.8 litres) a couple of weeks after the PEG operation. But the dietitian warned us that because of the purely liquid diet, the kidneys would be working a lot, so too much liquid wouldn't be good. So we went back down to her recommended litre of water.
If you don't mind sharing, how does that compare with the rest of you? Thanks
First time poster. I care for a friend with MND and he's had a PEG for 6 months. I know everyone will be different, but it would be really interesting to see how much people are taking through the PEG in a day. Now that it's much warmer, we will need to increase his water intake but are worried about the amount of liquids in total - perhaps the benefits will outweigh the negatives.
A normal day constitutes 1 litre of water and 1.2 litres of Ensure. Nil by mouth. (He was prescribed one bottle of ProCal per day too, but that was making him feel a little sick so we've cut that out).
For digestion reasons we were experimenting with increased water intake (about 1.8 litres) a couple of weeks after the PEG operation. But the dietitian warned us that because of the purely liquid diet, the kidneys would be working a lot, so too much liquid wouldn't be good. So we went back down to her recommended litre of water.
If you don't mind sharing, how does that compare with the rest of you? Thanks
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