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Noel Conway - RIP

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    Noel Conway - RIP

    So sad to hear

    Doug
    Diagnosed April 2017

    #2
    I read the letter he left for everyone. Very moving. What a strong man to take charge of his own death. May you rest in peace Noel Conway.

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      #3
      I hope Noelโ€™s legacy is supported by the political establishment.
      Iโ€™m going to do this even if it kills me!

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        #4
        Yes, very sad. He talks of his privileged position in being able to end his life by coming off ventilator and having help of palliative care, but not the quicker and more peaceful way to go as at Dignitas he would have preferred. I am at least comforted that we do at least have this first choice, to refuse treatment. I saw a film about the mother of someone with Huntingdon's disease, which is a really horrible disease, who has been campaigning for the right to assisted dying. She was prosecuted and could have spent years in jail, for keeping her son company when he obtained lethal medication and took it. A contested question, though, with the fear that some people will come under pressure to end their own lives for one reason or another.
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #5
          It's worth repeating that what we can do for a loved pet we should be able to do for a loved person. ๐Ÿ˜ xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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            #6
            matthew55 well said ๐Ÿ‘
            My belief is I (we/all)should have a right to choose when it's time to check out
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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              #7
              i agree. no one should have to go through this they should be able to decide for themselves.
              when i can think of something profound i will update this.

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                #8
                Ill second that
                Husband Albert diagnosed PMA Feb 21

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