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CBD oil and sleep/anxiety problems

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    CBD oil and sleep/anxiety problems

    My gran has recently been diagnosed with MND and is struggling to sleep due to anxiety and breathlessness. I have heard CBD oil can help with these issues but I didn't want it to slow down her breathing which I have heard things like sleeping pills can do. Does anyone have any experience with this?


    Hi Anna L I've been using CBD oil for anxiety and disturbed sleep for quite a few weeks now. It has helped me but I am not breathless so can't say about that.
    I use a company called 'Otherside' which is London based. They were also very informative. Sent me links to research etc.
    Others may have a different view but it's definitely helped me.
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​


      Anna L A warm welcome to the forum Anna, sorry to hear of your gran's diagnosis.

      Anything which has a sedative effect can depress respiratory function above certain doses. But, there is a quality of life issue to be taken into account here and, if your lovely gran is distressed and not sleeping, sometimes side effects are a worthy trade off, within reason of course.

      Medicine wise, Oramorph is usually good for relieving both breathlessness and, even though opioids depress resp function, it's given at a very low dose, it's fine. Lorazepam, another resp depressing medicine, is also routinely used in ALS/MND for this purpose. Her nurse can assess her breathing and advise.

      To take a step back, is your gran interested in using NIV (NonInvasive Ventilation)? That can help the breathlessness and anxiety.

      Love Ellie.
      Last edited by Ellie; 14 June 2021, 20:57.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


        Thank you both so much Linda and Ellie. It is actually my Mum who has been diagnosed but my daughter Gemma used my account to do my first chat and then signed my name

        The whole thing is pretty miserable at the moment. Only diagnosed four weeks ago by a private neurologist after messing around with GPs through most of covid. Struggling to sleep, breathe, eat and walk and waiting on urgent referrals to an NHS neurologist, respiratory consultant and gastro consultant but nothing moving very fast! I think it is the lack of sleep that is getting to her most of all and making her quite depressed. Agree that I think NIV is probably the answer so will get on the phone tomorrow and try to get that appointment moving along if I possibly can


          Daughters, eh 😄

          Oh that is hard for the 3 generations...

          Some suggestions: If your mum lives near an MND Care Centre, ring them, explain the circumstances and see if they'll take an urgent referral from your GP.

          Ring your mum's local hospice, they take referrals from people with life-limiting conditions (MND) and offer nursing support, amongst other services.

          If you're getting nowhere, ring the MND Connect Helpline.

          Yes, lack of sleep is utterly dreadful - I'd love to say she should take a sleeper or some CBD oil, but I don't know your mum's lung function.

          Care centres:

          Big hug to you and to Gemma. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


            Thank you Ellie. That is so very helpful and really kind. I am so glad that we have started using this chat and I am going to set my mum up on it tomorrow too as I think it would make her feel less lonely and isolated.

            Big hugs back at you. Anna xxx


              Hi Anna, welcome to forums. I hope that your mum gets all of the palliatives care service in place quickly and is linked up to a neurologist’s clinic. Ellie has given great suggestions, as always and good look following those. Take care, Lynne x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.


                Hello Anna L and welcome to a bunch of strangers that are going to be your new friends. Ask anything about anything. 🤗😍😁😀xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx


                  Hi Anna

                  lovely to meet you and your mum.

                  love and hugs Denise xxx