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    Not just yet

    Just had a lovely lady who will be providing me with a power wheelchair but after I move to somewhere that it will actually get into. She's done all the paperwork so that will speed things up later. At least the CIC guys are mint. πŸ€—πŸ˜πŸ˜πŸ˜€xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    That's good - having the paperwork done now will hopefully speed thing up once your new palace is found, which better not take too long!

    The more healthcare professionals you have in your corner, the better 😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Good news Mathew. I hope that you get a wheelchair friendly home soon, Lynne x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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        #4
        Thats great about your wheelchair Matthew and so glad your cic guys are spot on !

        I've everything crossed for you that a suitable home is found soon.

        Love Debbie x

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          #5
          Things are looking up Matthew
          I’m going to do this even if it kills me!

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            #6
            Fingers crossed Matthew x
            Diagnosed July 2020, ALS bulbar onset.

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              #7
              I have asked for a manual wheelchair and plan to practice out the back between showers! πŸ˜πŸ€—πŸ˜πŸ˜˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                I can just see you doing wheelies. πŸ˜‰

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                  #9
                  Originally posted by matthew55 View Post
                  I ... plan to practice out the back between showers!
                  Between rain showers or washing-yourself showers? I'm thinking if it's strenuous work, you might work up a sweat!!

                  The gnomes will be entertained for sure, shouting encouragement. 😍😍 😘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Can you do hand break turns Matthew? πŸ˜‰

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