Just had a lovely lady who will be providing me with a power wheelchair but after I move to somewhere that it will actually get into. She's done all the paperwork so that will speed things up later. At least the CIC guys are mint. π€πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
That's good - having the paperwork done now will hopefully speed thing up once your new palace is found, which better not take too long!
The more healthcare professionals you have in your corner, the better πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good news Mathew. I hope that you get a wheelchair friendly home soon, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Thats great about your wheelchair Matthew and so glad your cic guys are spot on !
I've everything crossed for you that a suitable home is found soon.
Love Debbie xComment
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Things are looking up MatthewIβm going to do this even if it kills me!Comment
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Fingers crossed Matthew xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I have asked for a manual wheelchair and plan to practice out the back between showers! ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I can just see you doing wheelies. πwhen i can think of something profound i will update this.Comment
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Between rain showers or washing-yourself showers? I'm thinking if it's strenuous work, you might work up a sweat!!Originally posted by matthew55 View Post
The gnomes will be entertained for sure, shouting encouragement. ππ πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Can you do hand break turns Matthew? πwhen i can think of something profound i will update this.Comment
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