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    #31
    Oh Barry

    that must have been such a shock.

    hope the roadtesting goes well. Don't do too many wheelies.

    love and hugs Denise xxx
    when i can think of something profound i will update this.

    Comment

      #32
      Ow Barry, hurt body and hurt pride, so I give you a big virtual hug (they don't hurt!)

      Hope you manage to avoid the garden's prized specimens with the powerchair 🤭

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user      .
      ​

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        #33
        Well that outing went badly. Arrived at the botanical garden to find you needed to book a time slot and besides which the disabled access parking was suspended due to an alternative entrance. New plan was to go to Leith and explore accessible areas. The area is chaotic as the tram extension is underway so a warning to anyone planning a visit to Edinburgh, avoid Leith. Couldn’t find anywhere to park so I headed back to the hotel.
        I’m going to do this even if it kills me!
        • 👍 1

        Comment

          #34
          oh barry. things arent going well at all. bit of a let down. i remember going to the beach from edinburgh a lovely beach with the same name as the sea shells. i cant think what its called. went there when our kids were small. we had such a lovely time. another life. xxx
          when i can think of something profound i will update this.

          Comment

            #35
            That is a real shame for you Barry. Yes, get used to prebooking admission times be it for a restaurant, zoo or garden etc...

            xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user            .
            ​

            Comment

              #36
              Oh Barry .. im sorry your outing was such a hassle.... sometimes accessible areas are anything but.

              I hope you're not too sore after your fall in M and S.and that the rest of your trip ( no pun intended !) goes well x

              Comment

                #37
                Better luck tomorrow Barry!
                Denise.....Musselborough or something like that??x
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                Comment

                  #38
                  Yes that was it.thanks Heather 😚
                  when i can think of something profound i will update this.

                  Comment

                    #39
                    I hope that your mobility hastily been effective by your fall Barry and that you enjoy the rest of your trip. Love Lynne x
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

                    Comment

                      #40
                      Hurrah success today with a wheelchair accessible “stroll” along the shore promenade in Queensferry. My first real road test of my new Pride i go folding power wheelchair. Much more compact than my scooter and better manoeuvrability. I was struggling to hook it up to my hoist when I had finished my stroll and a very kind chap from Scottish Water just picked it up and manually lifted it into my boot. 9E29251A-CA0A-4FB5-A7DF-805579D63BB8.jpeg
                      I’m going to do this even if it kills me!

                      Comment

                        #41
                        Good news at last and we love the Scottish water man. Big kiss to him. Ok one for barry as well. 😚😚
                        when i can think of something profound i will update this.

                        Comment

                          #42
                          Originally posted by Barry52 View Post
                          ... a very kind chap from Scottish Water just picked it up and manually lifted it into my boot.
                          Must be all that Irn-Bru 💪💪

                          Looking forward to the next installment, Barry. xx

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user                          .
                          ​

                          Comment

                            #43
                            Not convinced that I should have kissed the Scottish water man but I will gladly accept the kiss from Denise . Onward to Gleneagles tomorrow so watch this space.
                            I’m going to do this even if it kills me!

                            Comment

                              #44
                              Steady on Barry...

                              " Hands off she's mine"
                              https://www.youtube.com/watch?v=fXOuRtllecc
                              The English Beat ( i just can't stop it 1980)I told my friend i'd check for youHe told me that he liked you toobut then i saw him kissing youI could 've die...
                              • 👍 1

                              Comment

                                #45
                                Yeah great music. Need this in the early bird club 😚
                                when i can think of something profound i will update this.

                                Comment

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