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    I never thought

    My tummy has expanded overnight and I'm reminded of starving children. Paranoid or practical? πŸ€”πŸ˜ŸπŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Are you sure everything is ok with your peg?
    when i can think of something profound i will update this.

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      #3
      Hi Matthew , do you need to get a health professional to take a look at what’s happening ?As Denise said it could be the PEG.
      I am still in hospital awaiting RIG scheduled for Thursday,Hope you get sorted .
      Best wishes
      Mary

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        #4
        Matthew you might have a blockage or infection. You should get medical help. πŸ˜™
        when i can think of something profound i will update this.

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          #5
          The CIC Nurse would have seen your balloon-like tummy on one of his visits today, no?

          Hope you don't go off like said balloon and do a tour of your room - best stay indoors 😍 xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            The hospice is visiting on Thursday I will ask them.
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Hope you're not in pain or discomfort with it Matthew. Xx😘

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                #8
                How is the balloon tummy now - had it subsided by Thursday when the hospice nurses came? xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Slight shrinkage but another job tomorrow. πŸ€—πŸ˜˜πŸ˜πŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                  Comment


                    #10
                    Originally posted by matthew55 View Post
                    but another job tomorrow.
                    I won't ask... 😏 😘

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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