Well I just had my first venture out being pushed in my wheelchair. I know what a shake a bake must feel like! But seriously it was brilliant that my friend did it. π€πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
well done you. ive struggled getting it in and out of the car but can i get him to sit in it? no he refuses. yet it wasnt that long ago he would jump on the back of the supermarket trolley and wizz around the shop.when i can think of something profound i will update this. -
Avoid looking back if you can. The future is brighter. Sent with love. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Perhaps I should just nick a supermarket trolley and throw him in and I can ride on the back. πwhen i can think of something profound i will update this.Comment
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Oh, how exciting Matthew! Did you go anywhere in particular or was it out for a walk?
Good mate you have. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Glad you got out for lovely fresh air π I was the same yesterday I went to see friends come out of the Town Hall after they got married and had to go over the cobbled road it certainly rattled my brain a bit π€ͺπ³π Janette xOriginally posted by matthew55 View PostJanette xComment
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Oh Janette, cobbles are terrible, aren't they - real bone shakers. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Excellent. Your friend is a really good one xOriginally posted by matthew55 View PostALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Mouthguard and good bra required on cobbles πOriginally posted by Nettie View Post
Matthew, you won't need either ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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This gallery has 1 photos.Janette xComment
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thats a lovely photo nettie. is that your daughter?when i can think of something profound i will update this.Comment
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Thanks Denise no itβs a friend who I used to work with πOriginally posted by denise View PostJanette xComment
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Thereβs not many who have stuck around but she is one of them that has π₯°Janette xComment
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yes there's a lot of people like that. when you think they would be there for you and suddenly they have gone.when i can think of something profound i will update this.Comment
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