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    A new experience

    Well I just had my first venture out being pushed in my wheelchair. I know what a shake a bake must feel like! But seriously it was brilliant that my friend did it. πŸ€—πŸ˜˜πŸ˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    well done you. ive struggled getting it in and out of the car but can i get him to sit in it? no he refuses. yet it wasnt that long ago he would jump on the back of the supermarket trolley and wizz around the shop.

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      #3
      Avoid looking back if you can. The future is brighter. Sent with love. πŸ€—πŸ˜˜πŸ˜πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Perhaps I should just nick a supermarket trolley and throw him in and I can ride on the back. πŸ˜„

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          #5
          Oh, how exciting Matthew! Did you go anywhere in particular or was it out for a walk?

          Good mate you have. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Originally posted by matthew55 View Post
            Well I just had my first venture out being pushed in my wheelchair. I know what a shake a bake must feel like! But seriously it was brilliant that my friend did it. πŸ€—πŸ˜˜πŸ˜πŸ˜xx
            Glad you got out for lovely fresh air 😊 I was the same yesterday I went to see friends come out of the Town Hall after they got married and had to go over the cobbled road it certainly rattled my brain a bit πŸ€ͺπŸ˜³πŸ˜‚ Janette x
            Janette x

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              #7
              Oh Janette, cobbles are terrible, aren't they - real bone shakers. xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                #8
                Originally posted by matthew55 View Post
                Well I just had my first venture out being pushed in my wheelchair. I know what a shake a bake must feel like! But seriously it was brilliant that my friend did it. πŸ€—πŸ˜˜πŸ˜πŸ˜xx
                Excellent. Your friend is a really good one x
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

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                  #9
                  Originally posted by Ellie View Post
                  Oh Janette, cobbles are terrible, aren't they - real bone shakers. xx
                  πŸ˜‚πŸ˜‚ah yes my teeth were chattering 😬
                  Janette x

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                    #10
                    Originally posted by Nettie View Post
                    πŸ˜‚πŸ˜‚ah yes my teeth were chattering 😬
                    Mouthguard and good bra required on cobbles πŸ˜‚

                    Matthew, you won't need either 😍😍
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
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                      This gallery has 1 photos.
                      Janette x

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                        #12
                        thats a lovely photo nettie. is that your daughter?

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                          #13
                          Originally posted by denise View Post
                          thats a lovely photo nettie. is that your daughter?
                          Thanks Denise no it’s a friend who I used to work with 😊
                          Janette x

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                            #14
                            There’s not many who have stuck around but she is one of them that has πŸ₯°
                            Janette x

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                              #15
                              yes there's a lot of people like that. when you think they would be there for you and suddenly they have gone.

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