I'm not getting emails notifying so if I disappear it's for a film or something. It makes live conversation very time consuming. I got fed up trying to get it fixed so I gave up. I need a life however boring. π€πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Aye Aye Captain ππ I can do both ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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most exciting thing for me this morning was unblocking the loo. i never realised how capable i am. lets hope life doesnt throw up anything equally exciting this afternoon.
when i can think of something profound i will update this.Comment
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