My carers bless them, their supervisor says that tap water has dangerous bacteria that could harm me so they must use cooled boiled water. If it's okay to drink how is it dangerous to me? 🤗😁😘😍xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
I'm surprised but I'd use boiled water cooled for peg use.
perhaps it's just in case you get ill and someone tells them they should have! Who knows. I'm sure you've used worse than tap water 😄when i can think of something profound i will update this. -
Oh you can bet I have 😁😁😁😁xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Yes my district nurse wants sterile water, and dietician says rubbish, tap water fine.Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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