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    It was only 24 Hours

    So yesterday started with such promise and ended with me in back in Wigan Hospital on a drip. Atleast today I finally got a catheter fitted, my extreme constipation being dealt with and my potassium being brought back from the dead. Add to that the prospect of a shiny new PEG tube and the 24 hours have ended better than they stated. Oh and no prosac as apparently it had given me a heart murmur. Swings and roundabouts πŸ˜πŸ˜πŸ€—πŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Sorry to hear that mate. Do you know what caused the low potassium levels? Hope they sort you out with a new happy pill.

    Swings and roundabouts for sure πŸ€—πŸ€—
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Was this to do with your swollen tum?

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        #4
        Sorry Mathew and hope everything settles down well, love and hugs πŸ€—, Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          #5
          Yes hope they can find something else to replace the Prosac. I never realised how important state of mood was till now. Hope all goes well.

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            #6
            It was the swollen tummy as I stopped eating and continued with my meds. πŸ˜πŸ˜πŸ€—πŸ˜˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              matthew55 hope you're home soon you've really been through the wringer! πŸ€•πŸ€—
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                #8
                🀨 You never mentioned that you stopped eating πŸ€·β€β™€οΈ that explains a lot.

                Hope you're comfortable and being well looked after. Anything else that's bothering you, this is a good opportunity to get a Matthew-MOT+ 😍 πŸ˜˜πŸ˜˜πŸ€—πŸ€—
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Big hugs to you Matthew πŸ€—πŸ˜˜ Hope you're feeling more comfortable and that you are getting top care. Fingers crossed 🀞🀞🀞you're home soon with your problems sorted ( or at least some of them !)

                  Also hope you were able to watch the ⚽️
                  Lots of love
                  Debbie x

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                    #10
                    Good Luck Matthew..at least you sound like you are sorted.You don’t need to be a regular at Wigan hospital.I ended up on a potassium drip as well when had the RIG fitted last week.My appetite is poor now although I can swallow ok at the moment.
                    Hope you are home soon and get carers restarted.
                    Best wishes
                    Mary

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                      #11
                      Thanks girls my favourite carer who I have a number for knows and he primed and ready to reinstate when I tell him. The new Matthew will be home Friday or Monday πŸ˜πŸ˜πŸ€—πŸ€— xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Oh and my stomach swelling occured overnight on a Saturday πŸ˜˜πŸ˜˜πŸ˜πŸ˜πŸ˜πŸ€—xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          Matthew 2.0 - revamped and upgraded πŸ˜‚πŸ˜‚πŸ˜˜
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #14
                            Best wishes Matthew and hope you get home soon 🀞
                            Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                              #15
                              Thinking of you, Hope you get sorted and home as soon as possible xx

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