So yesterday started with such promise and ended with me in back in Wigan Hospital on a drip. Atleast today I finally got a catheter fitted, my extreme constipation being dealt with and my potassium being brought back from the dead. Add to that the prospect of a shiny new PEG tube and the 24 hours have ended better than they stated. Oh and no prosac as apparently it had given me a heart murmur. Swings and roundabouts πππ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Sorry to hear that mate. Do you know what caused the low potassium levels? Hope they sort you out with a new happy pill.
Swings and roundabouts for sure π€π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Was this to do with your swollen tum?when i can think of something profound i will update this.Comment
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Sorry Mathew and hope everything settles down well, love and hugs π€, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Yes hope they can find something else to replace the Prosac. I never realised how important state of mood was till now. Hope all goes well.Comment
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It was the swollen tummy as I stopped eating and continued with my meds. πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 hope you're home soon you've really been through the wringer! π€π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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π€¨ You never mentioned that you stopped eating π€·ββοΈ that explains a lot.
Hope you're comfortable and being well looked after. Anything else that's bothering you, this is a good opportunity to get a Matthew-MOT+ π πππ€π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Big hugs to you Matthew π€π Hope you're feeling more comfortable and that you are getting top care. Fingers crossed π€π€π€you're home soon with your problems sorted ( or at least some of them !)
Also hope you were able to watch the β½οΈ
Lots of love
Debbie xComment
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Good Luck Matthew..at least you sound like you are sorted.You donβt need to be a regular at Wigan hospital.I ended up on a potassium drip as well when had the RIG fitted last week.My appetite is poor now although I can swallow ok at the moment.
Hope you are home soon and get carers restarted.
Best wishes
MaryComment
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Thanks girls my favourite carer who I have a number for knows and he primed and ready to reinstate when I tell him. The new Matthew will be home Friday or Monday πππ€π€ xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Oh and my stomach swelling occured overnight on a Saturday ππππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Matthew 2.0 - revamped and upgraded πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Best wishes Matthew and hope you get home soon π€Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Thinking of you, Hope you get sorted and home as soon as possible xxComment
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