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    #16
    Does sound a strange place youve been, glad you're back home and seemingly inspiringly cheerful x
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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      #17
      Catheter and pads mean I never need a toilet again. 😁😉😀😘xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #18
        Could still use bio loo for wash and brush up. 😄
        when i can think of something profound i will update this.

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          #19
          Gosh Denise you sound like me.( Always promoting my bio bidet)For the moment I love my bio bidet.
          Keep positive Matthew..You sound like you are glad to be home
          Best Wishes
          Mary

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            #20
            Glad to read you are back on here, take care of yourself Matt x
            Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

            Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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              #21
              Glad your back Matthew

              And sense of humour intact

              Enjoy your sofa and own space


              Donna

              Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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                #22
                Well it turns out that I can walk unaided and I'm using my super loo again. 😀😁🤗😍xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                  #23
                  Well done you. Was all this because of a stomach problem?
                  when i can think of something profound i will update this.

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                    #24
                    Happy to hear that - the loo lives to service you again 👍👍 😘
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                      #25
                      That was part of it 😁😀😉🤗xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                        #26
                        Originally posted by matthew55 View Post
                        That was part of it
                        Blimey, you'd do well under interrogation - did you work for MI6? 😂😂

                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                          #27
                          So much of what happens is up to us and is down to our brains. I could have stayed in bed and had everything done for me but I believe that God only helps people who can help themselves. Hence in three days I am back to where I was before the last Hospital visit with the exception of a catheter but I have a bag for that, when I remember to unwrap it. 😁😆😍😘xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                            #28
                            Glad you hear you are progressing well Matthew.
                            Best wishes
                            Mary

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