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Mindset - can it help?
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I find life goes on no matter what happens to us as individuals. The trick is to face it with a smile. ππππxx
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Thank you all for replying. Noone has told me that i have a specific diagnosis, but i'd guess the 3 -5 year, ALS as i have a known wonky gene. I also accept that one feelings will chaange at different stages of the disease. If there really are studies that say positive mindset helps, i wouldn't be surprised. I consider myself very fortunate thus far, but have had a few moments wondering if i would still feel this chipper if there was a lot more progression. As it is, i have not felt surprised, shocked, upset or anything negative so far, and am grateful that i have not succumbed to any.
Reading about other conditions has made me wonder about my specific version of the disease, but, as long as i stay his whole, it really does not matter.
So sorry to read about the terrible losses some of you have suffered. Deciding to stay positive after those appalling results is a choice that not everyone can make.
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Ah to have a friend who knits. But seriously anything that works is a good thing in my book. ππππxx
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overdid the photoswith me struggling to understand this technology!
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Have I introduced you to my "happy" cushion? A friend knitted it for me and said it would make me smile and therefore feel happy! Not sure if it would work if feeling depressed, but it gives me warm feeling that she cared enough to make me one.x
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So difficult to stay positive when every day you are reminded that you cannot do some of the simplest things in life.
As a family we joke about it, it's a military way of dealing with dire situations, we seek the funny side of my condition.
What do you say to anyone when they greet you with "how are you?", which is an often used greeting statement?
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Olivia H also depends as you say on where you're 'at' time wise....for me early days so all the usual grief process to get through before I even know how I am -if that makes sense. For others- years in - the place they are mentally may be very different.
matthew55 life can never be the same with such loss...yes the love lives on.π
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There's also a very upbeat lady in US, Dagmar Munn, who has a blog about mindfulness and positivity. She was diagnosed with als eleven years ago.
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At well over 9 years, with classic als, I'd agree with all the points. Personally I struggled to handle the diagnosis for 6 months then decided to book a holiday and try to live a 'normal' life and not dwell on what might be. We had a famiily tragedy shortly after, so I had to support others. Clearly I am both lucky in terms of progression, but have tried to be positive too. My consultant said in her many years of working with mnd, those who were more positive did better...I guess in a degenerative condition, this can make sense.
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The pain fades but the love never dies ππΌπβποΈxx
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