I've only had it for a couple of weeks and today the tap broke and I've spent a small fortune on overnight bags, day bags, stands and shoulder bag. Who knew having MND/ASL could be so expensive! 😆😁😄😘xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Hi Matthew, Neil has also been catheterised now and the District Nurse has organised everything he needs. Your GP should be prescribing day and night bags.
Lynda x -
Hi Matthew,
I know from working in a hospital that like Lynda said all catheter bags, stand etc are provided via NHS,
Maybe contact your district nurse team and they will order what you need.
Best wishes
Mary
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Ah but it's the weekend. I used to look forward to Sunday now I dread it.😄😁😍😘xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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District nurses should have on call number?if not Hope you get supplies on Monday
Best wishes
MaryComment
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That's the problem District Nurses have only got a voice number. My friend isn't here yet so I have ordered stuff to arrive tomorrow. I just want to be comfortable in my remaining days. 😁😄😍😘xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Whats it like to have one fitted? Im sure Stephen is going to have to have one at some stage.when i can think of something profound i will update this.Comment
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Perfectly painless 🤗😁😍😘xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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