If like me you have well meaning carers who syringe copious amounts of air along with your meds help is at hand. Get an empty syringe, I use a 60mil, take the plunger out and screw onto end piece. Lie as flat as you can and raise the syringe straight up. Release clamp. Tense stomach. Hear a satisfying blop in the syringe. Repeat as required. Get someone to help if any of this is beyond your capabilities. We are locked in not out. Stay Strong. πποΈππ€xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
this is just a new way of farting. admit it
when i can think of something profound i will update this. -
Or tell your carers *not* to pump you full of air in the first place, it's uncomfortable and shouldn't happen... It's easy to expel air from a syringe beforehand!
π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I have told till I'm blue in the face. You can lead a horse to water......... ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Sometimes I've noticed some bubbles coming through. Stephen loves the idea of extra wind. He has no shame.when i can think of something profound i will update this.Comment
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