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    A simple way to cool down quickly is to hold your wrists under a cold running tap for a minute or so. Or if that's not possible have someone put your hands and wrists into a bowl of iced water. πŸ‘πŸ’¦πŸ€“πŸ˜Žxx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Good idea Mathew, Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      feet in cold water is good. even just bare feet.
      ice lolly down your t-shirt.
      pants in the freezer is good. doesnt stay cold for long but just for a while its wonderful.
      freezer things that go in the icebox just hold them or give them a big hug.
      better still put feet in ice box

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        #4
        πŸ’‘I have a small hot water bottle that I freeze❄
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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          #5
          I know I always bang on about hydration πŸ˜„ but please, please make sure you're all getting enough fluids daily, preferably water and no, alcohol does not count 😍😍😍

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #6
            Alcohol dries you out.
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Does Guinness count?

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                #8
                I'm afraid so me darling πŸ˜˜πŸ˜πŸ˜πŸ€—xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  2 glasses of Guinness. 2nd glass to make up for damage done by the first πŸ˜‚

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                    #10
                    denise Don't know how you can drink Guinness in this heat, even if it's ice cold. 😡

                    Wonder if you can freeze it and eat it like an ice lolly?? xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      Hey Ellie thats worth a go.

                      How would I get it out of the can? xxx

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                        #12
                        I haven't had a Guinness for years. Or sausages or bacon. You can imagine what we are piggin out on.

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                          #13
                          How many ways can I say this? Stop with the food references, it's mental torture. 😠😑🀬😀
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Originally posted by matthew55 View Post
                            How many ways can I say this? Stop with the food references, it's mental torture. 😠😑🀬😀
                            Yes I concur Matthew it’s so not fair πŸ₯ΊπŸ˜€
                            Janette x

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                              #15
                              Sorry guys

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