A simple way to cool down quickly is to hold your wrists under a cold running tap for a minute or so. Or if that's not possible have someone put your hands and wrists into a bowl of iced water. ππ¦π€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Good idea Mathew, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
feet in cold water is good. even just bare feet.
ice lolly down your t-shirt.
pants in the freezer is good. doesnt stay cold for long but just for a while its wonderful.
freezer things that go in the icebox just hold them or give them a big hug.
better still put feet in ice box
when i can think of something profound i will update this.Comment
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π‘I have a small hot water bottle that I freezeβInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I know I always bang on about hydration π but please, please make sure you're all getting enough fluids daily, preferably water and no, alcohol does not count πππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Alcohol dries you out.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Does Guinness count?when i can think of something profound i will update this.Comment
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I'm afraid so me darling ππππ€xx
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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2 glasses of Guinness. 2nd glass to make up for damage done by the first πwhen i can think of something profound i will update this.Comment
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denise Don't know how you can drink Guinness in this heat, even if it's ice cold. π΅
Wonder if you can freeze it and eat it like an ice lolly?? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Hey Ellie thats worth a go.
How would I get it out of the can?
xxx
when i can think of something profound i will update this.Comment
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I haven't had a Guinness for years. Or sausages or bacon. You can imagine what we are piggin out on.
when i can think of something profound i will update this.Comment
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How many ways can I say this? Stop with the food references, it's mental torture. π π‘π€¬π€Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Yes I concur Matthew itβs so not fair π₯Ίπ€Originally posted by matthew55 View PostJanette xComment
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Sorry guys
when i can think of something profound i will update this.Comment
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