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    Rig tube security

    Just had a peg tube fitted and curious to know what others do with the dangly tube! Is there an easy and comfortable way to secure it out of the way which doesnt involve sticking plaster?

    #2
    I would be interested too. Mick put 2 pieces of surgical tape on

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      #3
      My husband uses the surgical tape too, there must be another way, we have looked on-line and they look quite bulky.

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        #4
        Hi Mandy and Shrew;

        I have heard of something like a pouch but can't find it now.

        Some people found the tube sticking out under their clothes annoying or uncomfortable. One woman had made a little fabric pouch to cover the end of her husband's PEG tube so it wouldn't dig into his skin when lying down.

        I don't know what type of feeding tube your husbands have but if it is a RIG, it will probably be replaced after 4 months. It then could be swapped for a button one that sits very close to the skin. A PEG can also be changed for a button type feeding tube but they do not need changing for a few years.

        Love Terry
        TB once said that "The forum is still the best source for friendship and information."

        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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          #5
          Hi Mandy,

          There are belted pouch-type products available which go around the body. The tube goes into the pouch which then sits against the skin BUT best practice is to allow free circulation of air aroung the site and keep the area dry - moisture build up can lead to fungal growth.

          G tube holder.jpg


          So, taping the long tube may be better for now, even if his tummy gets a mini-wax Medi tape shouldn't pull his hairs off but don't put tape in the same spot every day.

          A long tube can be changed for a low profile button once the tract is established - I have this type - if the feeding tube is balloon retained, most put in by a RIG procedure are, the switch is very easy. If by PEG procedure, it's still straightforward but the bumper retainer in the tummy is usually cut or disconnected.

          Switching to a button is a personal choice. I am very happy I did it as it suits my situation better.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Sorry Terry (& Mandy) for similar info in our posts - I started typing, then stopped for lunch, finished typing and posted it, only later seeing that we'd written similar things!!

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              Thanks Ellie and Terry very helpful as usual, we have the rig lady (not a nurse, we were told, lol) coming tomorrow to make sure all is well and to take the stitches out so will ask for a button one for the future as my husband would perfer that, he will make do with the surgical tape for now , have a good evening,

              love Mandy and Dave.

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                #8
                great , they did say after 16 wks he would have to go back in , he could hopefully change it to button type

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                  #9
                  Hi Shrew;

                  I don't think there's any need to go back in but he might need to be measured before hand, which would involve taking that one out and then measuring and putting a RIG back in till the correct button one arrives.

                  Maybe if he goes into hospital they will have the different lengths on hand so they can replace it with a button straight away.

                  Love Terry
                  Last edited by Terry; 13 February 2019, 17:45.
                  TB once said that "The forum is still the best source for friendship and information."

                  It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                  Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                  Comment


                    #10
                    thanks Terry i think they said first change done in hospital and then a nurse comes to do subsequent ones but im not sure, last wk a district nurse came to change water in balloon, they said would do this weekly

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                      #11
                      Yes Shrew, it's not unusual to do the first change in hospital.

                      My husband changes my button when it's required (approx every 6-8 months) It takes less than a minute and is painless - the doctor showed him how to do it. We always have a spare in the house.

                      I'm not suggesting you do Mick's, don't worry!! But it really is quick and easy and nothing for him to worry about.

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        Thanks Ellie. When he had it done they said he had to carry a replacement tube if we were out but we werent given one .We then had a delivery of syringes a couple of weeks after and got a time slot. I think it was last Tuesday I got a text to say another delivery was coming wednesday between 22.00 and 2am !!! anyway it came just after 3pm when I was at work and it was a box with a tube in. Must remember to take it if we go out!

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                          #13
                          Oh my days Shrew, they do like to frighten people, don't they!!!

                          IDK why nor how Mick's tube might fall out I've never had a balloon fail nor a button fall out in 11 years - still, it's best to be prepared.

                          Love Ellie.
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          Comment


                            #14
                            !!!!!! I know it would be bad luck Ellie, especially after the infection saga

                            Comment


                              #15
                              Hi Shrew and Ellie;

                              I have had at-least two balloons go and have heard of others that have had it pulled out. I don't know if they were pulled out by gentle pressure after the balloon had deflated or because of direct force, possibly by lifting the person after a fall, but both are possible.

                              The important thing is to replace it soon after, this could be the same tube that came out. If it is a RIG then it could be made 20mm longer before going back in.

                              I have know of people in nursing homes where this has happened and then gone to hospital by ambulance. A&E had no one with the expertise to replace it and after 4 or so hours the hole had closed up enough to make it impossible to insert without probably another Opp.

                              Having said that, I never take a spare tube out with me but I would if I went away for a few days.

                              Dvd, posted about some neoprene plug that could be inserted, it is available in different sizes to suit and would be a much easier thing to put in to keep the hole open.

                              Also my last make of button tube also offered something similar but I have failed to attain it.

                              I am trying to look for Dvd's old post and will update you if I find it.

                              Love Terry
                              TB once said that "The forum is still the best source for friendship and information."

                              It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                              Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                              Comment

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