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Vent or no Vent, that is the ??

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    Vent or no Vent, that is the ??

    I found this a while back, want to share it. There are many people with MND/ALS that have a bulbar presentation. Sometimes that goes so quickly like my brother, other times it does not. Some of us will have long-term use of our legs, arms, and hands, but be stricken with bulbar symptoms. Technology about vents and therapy for breathing are explored in this 19 minute YouTube video.

    https://youtu.be/p5WQ6-fDc6g

    #2
    Bulbar and second year anniversary this January. No NIV or life extension drugs. Just one day at a time. 👍x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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