Vent or no Vent, that is the ??

[Johnny5 Forum Member Find all posts View Profile Close Johnny5]

I found this a while back, want to share it. There are many people with MND/ALS that have a bulbar presentation. Sometimes that goes so quickly like my brother, other times it does not. Some of us will have long-term use of our legs, arms, and hands, but be stricken with bulbar symptoms. Technology about vents and therapy for breathing are explored in this 19 minute YouTube video.

https://youtu.be/p5WQ6-fDc6g

[matthew55 Forum Member Find all posts View Profile Close matthew55]

Bulbar and second year anniversary this January. No NIV or life extension drugs. Just one day at a time. 👍x