I found this a while back, want to share it. There are many people with MND/ALS that have a bulbar presentation. Sometimes that goes so quickly like my brother, other times it does not. Some of us will have long-term use of our legs, arms, and hands, but be stricken with bulbar symptoms. Technology about vents and therapy for breathing are explored in this 19 minute YouTube video.
https://youtu.be/p5WQ6-fDc6g
https://youtu.be/p5WQ6-fDc6g
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