Don't knock it if you haven't tried it ๐๐๐๐xx
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Thank you for your advice and glad to see some of you are enjoying banter.
We are a bit loathe to clobber up our house with a 2nd wheelchair but will think on and follow some of your links
Warmly
Andy
โDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues โ Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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Hello Ellie
Originally posted by Ellie View Post[FONT=Arial]Sorry to hear youโre needing wheels Andy.
Originally posted by Ellie View PostIn the absence of a supplied powerchair and, taking your hand function into account, have you looked at any second hand powerchairs or small mobility scooters? xx
Part of our trouble is transport, both lifting a wheelchair or other device into our car, even if it will fit at all
It may be time to invest in a WAV โ shame I'm too old for motability leasingWarmly
Andy
โDiagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues โ Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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We had a manual wheelchair for a while and all I did was lift it in and out of the car and garage. He wouldn't sit in it. I didn't think there was an age limit on motability? Though I'm dizzy with info, telephone numbers and services. I'm keen to buy a car but I'm thinking one to store an unused wheelchair or get a wav and wheel him in. To be honest I don't know what is worse having no help and no back up or having so much information I just want to cry. Anyone says 'and how are you coping' ๐ซ . I phoned a number this morning hoping she'd tell me why I called. I'm in a bad way ๐ฅบwhen i can think of something profound i will update this.
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Hi Denise,
its good you've got support for you and Stephen at last. However too much advice can be totally overwhelming. If you can, just deal with one thing ar a time. You've had so much upheaval you need time to rest and recharge..
You also need time to perfect your pole ๐ dancing ๐
Love Debbie x
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Originally posted by Deb View PostYou also need time to perfect your pole ๐ dancing
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โ
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We might win gold for something. Yeah.
Have to find somewhere else to live. Need to get a car. Yesterday I walked to the local shop and felt like I couldn't walk. It was a very strange feeling.
I'm sure it will all sort it's self out. ๐ฉwhen i can think of something profound i will update this.
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You've a lot on your plate denise This works for me - make a list, almost like a spreadsheet, keep tracks on where you're at with each task.
And breathe... ๐ค๐ค๐๐
โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โ
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Andy and Denise there are plenty of used WAVs on sale. It obviously depends whatโs available in your area but a bit of research is the way to go. Good luck, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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