Announcement

Collapse
No announcement yet.

Wheelchair matters

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    Don't knock it if you haven't tried it πŸ˜πŸ˜†πŸ˜€πŸ˜‚xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    Comment


      #17
      My balance is shot, I'd keel over like a felled tree if I sat on your sheepfest πŸ˜‚πŸ™„πŸ˜˜
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        #18
        Thank you for your advice and glad to see some of you are enjoying banter.

        We are a bit loathe to clobber up our house with a 2nd wheelchair but will think on and follow some of your links

        Warmly


        Andy

        ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

        "Things turn out the best for people who make the best of the way things turn out"

        Comment


          #19
          Hello Ellie

          Originally posted by Ellie View Post
          [FONT=Arial]Sorry to hear you’re needing wheels Andy.
          Thank you – new challenge

          Originally posted by Ellie View Post
          In the absence of a supplied powerchair and, taking your hand function into account, have you looked at any second hand powerchairs or small mobility scooters? xx
          Your analysis is insightful as ever – especially given my wife who is my most constant carer has a bad back. We tried to push wheelchair at some gardens locally here a couple of weekends ago with my daughter pushing and she says it gave her real upper body workout!

          Part of our trouble is transport, both lifting a wheelchair or other device into our car, even if it will fit at all

          It may be time to invest in a WAV – shame I'm too old for motability leasing
          Warmly


          Andy

          ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

          "Things turn out the best for people who make the best of the way things turn out"

          Comment


            #20
            We had a manual wheelchair for a while and all I did was lift it in and out of the car and garage. He wouldn't sit in it. I didn't think there was an age limit on motability? Though I'm dizzy with info, telephone numbers and services. I'm keen to buy a car but I'm thinking one to store an unused wheelchair or get a wav and wheel him in. To be honest I don't know what is worse having no help and no back up or having so much information I just want to cry. Anyone says 'and how are you coping' 😫 . I phoned a number this morning hoping she'd tell me why I called. I'm in a bad way πŸ₯Ί
            when i can think of something profound i will update this.

            Comment


              #21
              Sit down for ten minutes with your favourite drink and favourite music playing. Then stay there for an hour. πŸ‘πŸΈπŸ·πŸΉxx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

              Comment


                #22
                I sat down and didn't want to get up.

                I think I could do trampolining. In my head anyway πŸ™„
                when i can think of something profound i will update this.

                Comment


                  #23
                  Hi Denise,
                  its good you've got support for you and Stephen at last. However too much advice can be totally overwhelming. If you can, just deal with one thing ar a time. You've had so much upheaval you need time to rest and recharge..

                  You also need time to perfect your pole πŸ’ƒ dancing πŸ˜€

                  Love Debbie x

                  Comment


                    #24
                    Originally posted by Deb View Post
                    You also need time to perfect your pole πŸ’ƒ dancing
                    Don't know what poles you think Denise dances around, Debbie, but I don't think she wears long frocks like that πŸ˜‰πŸ€­πŸ€£πŸ€£πŸ€£πŸ˜˜

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

                    Comment


                      #25
                      🀣🀣🀣🀣 I'm just an innocent .. is she not a maypole dancer ? πŸ˜„πŸ˜Šx

                      Comment


                        #26
                        Originally posted by Deb View Post
                        is she not a maypole dancer ?
                        Of course she is... And Matthew is a Morris Dancer πŸ₯°
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

                        Comment


                          #27
                          In a previous life πŸ˜‰πŸ€”πŸ§πŸ€—xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                          Comment


                            #28
                            We might win gold for something. Yeah.

                            Have to find somewhere else to live. Need to get a car. Yesterday I walked to the local shop and felt like I couldn't walk. It was a very strange feeling.

                            I'm sure it will all sort it's self out. 😩
                            when i can think of something profound i will update this.

                            Comment


                              #29
                              You've a lot on your plate denise This works for me - make a list, almost like a spreadsheet, keep tracks on where you're at with each task.

                              And breathe... πŸ€—πŸ€—πŸ˜˜πŸ˜˜
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

                              Comment


                                #30
                                Andy and Denise there are plenty of used WAVs on sale. It obviously depends what’s available in your area but a bit of research is the way to go. Good luck, Lynne x
                                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                                I'm staying positive and taking each day as it comes.

                                Comment

                                Working...
                                X