Originally posted by richard
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ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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they are going to look into getting stephen a chair - that should be interesting. think its going to be a struggle to get him into one. but they need to start the ball rolling at some stage. they talked about stopping smoking - that also made me laugh - tried that one for 40 years.
yes im looking at 2nd hand wavs. i recall jeantte saying about head height, stephens 6ft 2", or being unable to see much out the windows so im going to look at that too. so much to think about. i'll get a car and he wont want to go out. though if we are stuck with this flat he wont be going any where any way. for one problem i solve another one seems to pop up. i was just going to think about something else but as it was another problem rather than a solution i have deleted it.
what i was thinking of doing was getting loads of stick on labels and using a wall and sticking them on so it looks like i am trying to solve a crime with lots of coloured threads linking one bit to another. it might work.when i can think of something profound i will update this.
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Originally posted by denise View Post... they talked about stopping smoking - that also made me laugh - tried that one for 40 years.
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by denise View Postthey are going to look into getting stephen a chair - that should be interesting. think its going to be a struggle to get him into one. but they need to start the ball rolling at some stage. they talked about stopping smoking - that also made me laugh - tried that one for 40 years.
yes im looking at 2nd hand wavs. i recall jeantte saying about head height, stephens 6ft 2", or being unable to see much out the windows so im going to look at that too. so much to think about. i'll get a car and he wont want to go out. though if we are stuck with this flat he wont be going any where any way. for one problem i solve another one seems to pop up. i was just going to think about something else but as it was another problem rather than a solution i have deleted it.
what i was thinking of doing was getting loads of stick on labels and using a wall and sticking them on so it looks like i am trying to solve a crime with lots of coloured threads linking one bit to another. it might work.
Hope you get sorted soon 👍 xJanette x
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I have had a manual wheelchair for over a yesr Even when I could walk around the house , I couldn’t walk further than the car. As most people will know they are ok in supermarket but on uneven pavement or gravel they are very uncomfortable. My OT applied for a powered chair a few months ago to solve this problem. But much to our surprise Wheelchair Services turned me down. They wouldn’t provide one just for outside.I can’t fit one inside anyway. Too many sills and steps. So after a bit of research, we bought a folding one. I can even go to park for a walk with our dogs. It’s still comfy and of course no problem at the shops. I still find hard to believe that everything is a postcode problem. People think because I have MND I have no problem getting anything from PIP to a wheelchair. Thank goodness I have a good physio and all the other professionals that look after me.
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