Wheelchair matters

[LesleyB]

I have had a manual wheelchair for over a yesr Even when I could walk around the house , I couldn’t walk further than the car. As most people will know they are ok in supermarket but on uneven pavement or gravel they are very uncomfortable. My OT applied for a powered chair a few months ago to solve this problem. But much to our surprise Wheelchair Services turned me down. They wouldn’t provide one just for outside.I can’t fit one inside anyway. Too many sills and steps. So after a bit of research, we bought a folding one. I can even go to park for a walk with our dogs. It’s still comfy and of course no problem at the shops. I still find hard to believe that everything is a postcode problem. People think because I have MND I have no problem getting anything from PIP to a wheelchair. Thank goodness I have a good physio and all the other professionals that look after me.

[Nettie]

they are going to look into getting stephen a chair - that should be interesting. think its going to be a struggle to get him into one. but they need to start the ball rolling at some stage. they talked about stopping smoking - that also made me laugh - tried that one for 40 years.

yes im looking at 2nd hand wavs. i recall jeantte saying about head height, stephens 6ft 2", or being unable to see much out the windows so im going to look at that too. so much to think about. i'll get a car and he wont want to go out. though if we are stuck with this flat he wont be going any where any way. for one problem i solve another one seems to pop up. i was just going to think about something else but as it was another problem rather than a solution i have deleted it.

what i was thinking of doing was getting loads of stick on labels and using a wall and sticking them on so it looks like i am trying to solve a crime with lots of coloured threads linking one bit to another. it might work.

Yes Denise, we got a Fiat doblo there’s plenty of head height, Phil sat in my wheelchair and drove into it and he’s 6ft 2” also and he he had a little bit of headroom, the only thing is it has a shelf above the windscreen which blocks my view somewhat and I’m only 5ft 2”
Hope you get sorted soon 👍 x

[Ellie]

... they talked about stopping smoking - that also made me laugh - tried that one for 40 years.

Oh for goodness sake, have they no empathy... Leave the man one of the few pleasures he has left 🙄

[denise]

they are going to look into getting stephen a chair - that should be interesting. think its going to be a struggle to get him into one. but they need to start the ball rolling at some stage. they talked about stopping smoking - that also made me laugh - tried that one for 40 years.

yes im looking at 2nd hand wavs. i recall jeantte saying about head height, stephens 6ft 2", or being unable to see much out the windows so im going to look at that too. so much to think about. i'll get a car and he wont want to go out. though if we are stuck with this flat he wont be going any where any way. for one problem i solve another one seems to pop up. i was just going to think about something else but as it was another problem rather than a solution i have deleted it.

what i was thinking of doing was getting loads of stick on labels and using a wall and sticking them on so it looks like i am trying to solve a crime with lots of coloured threads linking one bit to another. it might work.

[Lynne K]

The G Logic is my everyday indoor chair and it’s very good for me. As far as wheelchair services are concerned the answer is “These are very expensive and cannot be changed”

Richard

Different to my local Wheelchair Services who are really good. I haven’t changed my powered wheelchair but they offered to do so when I described a powered wheelchair that I’d seen when we were at a motorway service area. She knew the one that I’d described but she explained that it cannot have a kerb lifter on it (which I have and need to get up and down local kerbs, up to 4 inches) so I declined. Lynne x

[Lynne K]

Andy and Denise there are plenty of used WAVs on sale. It obviously depends what’s available in your area but a bit of research is the way to go. Good luck, Lynne x

[Ellie]

You've a lot on your plate denise This works for me - make a list, almost like a spreadsheet, keep tracks on where you're at with each task.

And breathe... 🤗🤗😘😘

[denise]

We might win gold for something. Yeah.

Have to find somewhere else to live. Need to get a car. Yesterday I walked to the local shop and felt like I couldn't walk. It was a very strange feeling.

I'm sure it will all sort it's self out. 😩

[matthew55]

In a previous life 😉🤔🧐🤗xx

[Ellie]

is she not a maypole dancer ?

Of course she is... And Matthew is a Morris Dancer 🥰

[Deb]

🤣🤣🤣🤣 I'm just an innocent .. is she not a maypole dancer ? 😄😊x

[Ellie]

You also need time to perfect your pole 💃 dancing

Don't know what poles you think Denise dances around, Debbie, but I don't think she wears long frocks like that 😉🤭🤣🤣🤣😘

[Deb]

Hi Denise,
its good you've got support for you and Stephen at last. However too much advice can be totally overwhelming. If you can, just deal with one thing ar a time. You've had so much upheaval you need time to rest and recharge..

You also need time to perfect your pole 💃 dancing 😀

Love Debbie x

[denise]

I sat down and didn't want to get up.

I think I could do trampolining. In my head anyway 🙄

[matthew55]

Sit down for ten minutes with your favourite drink and favourite music playing. Then stay there for an hour. 👍🍸🍷🍹xx