No more dry mouth?

[matthew55]

Sounds too good to be true? Try XyliMelts I just had 8 hours sleep with just one interruption and that was for a full bag. I'm going to see if I can get it prescribed! 👍🤗😍😘xx

[Mary C]

Hi Matthew,
I bought some of those but haven’t used them Think they have to be stuck to inside of mouth so I was a little worried I would choke on the it.

Do you have the night time catheter bags ?I remember from hospital days they seem to hold more urine so less disturbance maybe.
Have a good day
Mary

[matthew55]

I stuck them on the outside of my upper gums above my canines, placing them ten minutes before going to bed, they stuck and worked perfectly. I have 2l bags but they are single use and currently I have 15 hours between carers who can change bags. 👍x

[Mary C]

Gosh Matthew, Can’t district nurses get you correct size catheter bags?Plus the larger night time catheter bags.Can you empty the bags yourself or are you dependent on a carer doing the task?
Do the care agency realise that not all your carers know how to empty the catheter and change to a night bag?
Good luck for a good nights sleep using the xylimelts.I was nervous about using them in case they fell off or I choke on them if they get dislodged.
Best wishes
Mary

[matthew55]

They don't come dislodged they stick and melt. I promise.

[John D]

I have been using Biotene gel to avoid dry mouth at night. MND friend gave me XyliMelts to try. They were even better. He buys from Amazon. Seeing GP for usual 3 month review this afternoon and will ask if they can be prescribed.

[matthew55]

My GP is checking with his pharmacist to see if xyilmelts are prescribable

[matthew55]

Sadly not available for prescription. ☹️

[John D]

My GP who is excellent said the same. Where are you buying it from Matthew.

[matthew55]

Amazon my friend 😕

[John D]

Thought so

[John D]

Lots of variants. Which one are you using, Matthew? MND friend gave me Mild Mint to try which are £15.99 for 40 on Amazon.

[matthew55]

Same as you at the moment 👍😁

[John D]

Via Google I’ve found cheaper similar XyliMelts but not identical to Amazon. Few pounds difference but will stick to Amazon. See what I did there.