I have decided to go for Sheltered Housing if only for a craft room and secure parking for a mobility scooter. ππ€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Sounds good - have you been inside a property, is it future proof? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thatβs a good Idea Mathew. Thereβs a brilliant one near to here, newly built just before we got this flat. It has lots of purpose built wheelchair friendly flats; a lift, a cafe and a hairdresser all in the building. Outside back thereβs a community garden with raised beds so people in where can get involved gardening. They have a community room/lounge where they have weekly enterprises. I applied but we didnβt get it. Steve didnβt want to get it anywhere.
Good luck, Lynne xLast edited by Lynne K; 29 July 2021, 10:23.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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I'm waiting for an invitation to view then it's a taxi ride. I have 513 points and band b which is good apparently ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Sounds great Matthew. π€ π Really hope the sheltered housing is suitable for you. XxComment
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Does the OT go with you, if not, you should bring someone with you and preferably video it for you!Originally posted by matthew55 View Post
Hope your invitation comes very soon. xx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Good plan, I will ask her. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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matthew55 brilliant news....are we all invited to the virtual house warming πππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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As soon as I hear you will hear ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Sounds like a great idea if it meets your future needs. The craft room and the secure parking are added bonuses! Tell me when to log on for the virtual housewarming πDiagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Good Matthew,
Are you being added to a waiting list or had an offer of a tenancy already?Is it extra sheltered housing with on site carers?
Really hope you get a suitable place soon.
Best wishes
MaryComment
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I'm on a waiting list but not for long. If I get one in Leigh I keep my carers and it's extra sheltered. Money off if I can't eat the meal provided. ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Excellent news Matthew
RichardRichardComment
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Hope it goes well. πwhen i can think of something profound i will update this.Comment
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ππππ Every cloud, eh !!Originally posted by matthew55 View Post
π€π€π€ for Leigh (and keeping your inked ladies ππ) π€π
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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