The relief of a complete clear out. πππ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
thats really nice to know. i just heard a funny noise coming from stephens direction. i was very worried as i had just showered and changed him. he thinks its george pushing his way underneath the arm chair. i am not so sure
george is a big white fluffy cat.
when i can think of something profound i will update this. -
Tmi ... π₯΄π₯°π₯°βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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LoL πππ€£π€£xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Excuse my ignorance Ellie what does Tmi meanπ€·πΌββοΈOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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Having been in hospital recently for 11days I got used to the daily questions about bowel movements,Constipation,Laxatives etc
Glad you are happy Matthewπ
Best wishes
MaryComment
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πππππππππππππππOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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ππ€£πwhen i can think of something profound i will update this.Comment
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Glad you asked Linda!! xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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