If sleeping was an Olympic event I would be in for a shot at Gold! 9 hours PB. ππ€ππ€£xx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
That's pretty good. I'm so jealous. I keep waking up about 2am. Very annoying. How are you doing that?when i can think of something profound i will update this. -
I cheat! Four Zopis πBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Sounds great Mathew xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Ok what's a zopis? Sounds like a Greek god. πwhen i can think of something profound i will update this.Comment
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Sleeping pillsBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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If you were an Olympian, Matthew, what would your discipline be? Couldn't picture you atop a prancing dressage horse - maybe the triathlon or high dive? πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Shooting would my preference ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Should've guessed ππ You know those bullets are blanks, don't you? π xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Haha no pole dancing π¬when i can think of something profound i will update this.Comment
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I could do synchronized diving. Would have to be with a hippo. Like to see them get that onto the top diving board. Certain we'd both go with a splash. πππwhen i can think of something profound i will update this.Comment
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