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PEG tube leaking/damaged

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    PEG tube leaking/damaged

    Last night when I was trying to get medication and water down my PEG tube, it all poured out on me, seems to have a leak or damaged. I tried using both endings and was sure I had screwed the tube on properly. Has anyone else had that experience? District nurse trying to locate a PEG nurse
    Diagnosed July 2020, ALS bulbar onset.

    #2
    Hi heather, it’s probably coming from further down where the connector thins out, it happens to mine quite often I always have spare to change them over your peg nurse will probably show you how to do this. Hope this helps Janette x
    Janette x

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      #3
      Thanks so much Janette, my dietician has come out and put another end on, she says they are not well made, and she has given me a spare. xx
      Diagnosed July 2020, ALS bulbar onset.

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        #4
        I'll be more relaxed about it happening now!
        Diagnosed July 2020, ALS bulbar onset.

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          #5
          I keep spares of the end bit. It's really easy to do yourself πŸ˜•πŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            Originally posted by Heather R View Post
            Thanks so much Janette, my dietician has come out and put another end on, she says they are not well made, and she has given me a spare. xx
            Aww glad you’ve got sorted πŸ‘ Janette x
            Janette x

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              #7
              Originally posted by matthew55 View Post
              I keep spares of the end bit. It's really easy to do yourself πŸ˜•πŸ˜xx
              Agreed
              Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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                #8
                We're having problems. UK fit different to Portugal fit. I'm having to use pliers to get things apart. Nightmare. 😩

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