I have become disillusioned with the management of my current care agency. The workers are great make no mistake, but their office is a branch of the Fourth Reich. π I am looking for a replacement, like my own personal D Day. ππ€£ππ¬πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
In my experience, that's par for the course - most carers try their best, office staff haven't a scooby what it's like on the ground. The 2 managers I deal with in my current care agency are both ex-carers, and it shows in how client centred they are, unlike any previous company I've used.
If you're shopping around, maybe wait until you move in case that makes a difference and/or consider employing your own PAs, if you can get funding, (as per JamesW 's thread) ? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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In extra care sheltered schemes they often use their own agency for carers....usually works well as they can offer support as and when needed 24/7 (That's the area I live in anyway)Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Best news my absolute favourite CIC carer is not leaving!!!! I'm so happy!!!! πππππxxxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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So glad you're happy Matthew! Any good news is so welcome ! XπComment
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Woohoo! Good news.
I won't ask how you persuaded them to stay ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Well he is my brother from a different mother ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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