I'm probably tempting fate but I am putting on weight, peeing for England, moving my bowels without drugs and generally feel better than I have for a long time. Eye of the hurricane or a last stand? ππππ€xx
Announcement
Collapse
No announcement yet.
Possible eye
Collapse
X
-
Good to hear that Matthew.
I think your decision to get a catheter was a great one, and pivotal - getting enough fluids in is easy-peasy now, getting fluids out is even easier πππ€©
Add in the carers and that you seem happier and more content in yourself with less day-to-day stress, that's a win-win situation for you.
I am SO happy that you're in a good place.
Much love π€π€π€ππππππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
Comment
-
matthew55 that's great news that you're feeling generally better....on a Sunday too....long may it last and maybe the start of a better phase now you've got 'things' more sorted. Brilliant!!!πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
- Likes 1
Comment
-
Great news that your feeling great just go with it obviously if you have a miracle cure please share π
Never thought I would say this but having a catheter is a real positive and has given me a lot more freedom no more impossible to access disabled toilets. Just need bottle to empty bag and go
.Saying this I have discarded some of the NHS catheter equipment and found lots of online suppliers - I prefer a shorter leg bag rather than the NHS one which ended at my ankle a bulging bag of pee hanging down from my trousers was not the look for me.
- Likes 1
Comment
-
Originally posted by Nettie View PostLeast I had a good sleep ππ
Sorry it happened to you, though love that you can have a laugh about it and, at least it didn't happen on your new celebratory bed linen ππππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
-
Originally posted by denise View PostI was awake about 3am woken up by a helicopter going round and round.
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 2
Comment
Comment