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    Home monitoring

    I have just got an oxygen monitor, the one that goes on your finger, and first few reads are upper 90's. I'm not sure if this is a good idea. What do you think? πŸ€”πŸ˜„πŸ˜πŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    something on news yesterday that said if you have dark skin then those things arent working properly.

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      #3
      I use one but only if I don’t feel too good πŸ‘
      Janette x

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        #4
        I use one only to see if the low levels are causing my headache, or it is there from another reason. A cheap and useful device.

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          #5
          Hi..Are these supplied via NHS.?Does it monitor carbon dioxide levels or just oxygen?I was told retention of carbon dioxide can cause headaches on waking.
          Mary

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            #6
            matthew55 I think they're a good idea. I have one and use it every now and then.

            Sats in the upper 90s is excellent πŸ‘πŸ‘πŸ‘ It'd be great to measure them on waking, be that at 3am or after a full night's sleep (with and without your Z pills) 😘😘
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              I bought one at the outset of covid...useful to have IMO πŸ˜‡
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                #8
                Important to note: pulse oximeters were in the news over the weekend - they give higher (false) readings on darker skin tones, so should not be relied upon by some people. xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  I've seen your photo πŸ’–, but I am quite sure there are forum members with various skin tones, who ought to be aware of the issue. xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Readings can vary 1-2% between fingers and hands.

                    Choose one finger and stick to it.

                    Doug

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                      #11
                      97 when I woke up πŸ˜„πŸ˜‰πŸ˜†πŸ˜€xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        #12
                        Originally posted by matthew55 View Post
                        97 when I woke up
                        That's excellent, I see how you can sleep comfortably without NIV.

                        For comparison, with NIV on overnight, my oxygen level doesn't go above 95, and spends most of the night hovering between 92-94.

                        I'm happy for you πŸ₯°πŸ₯°
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

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                          #13
                          Mary, an oximeter doesn't measure CO2 levels unfortunately. I think this can only be measured by blood sample from ear or wrist or somewhere?? I don't know if they are supplied by nhs, but are fairly cheap online xx
                          Diagnosed July 2020, ALS bulbar onset.

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