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    Catheter

    If you haven't already got one I highly recommend that you seriously consider getting one. It's the best thing that's happend to me since diagnosis. I admit I was having nightmares before having it but I was so wrong. πŸ‘πŸ˜˜πŸ˜„πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Glad it's working out well for you.

    Is it the community nurse who changes it or who? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .
    ​

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      #3
      My carers but I can do it too.πŸ‘πŸ˜˜πŸ˜„πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        Blimey, a man of many talents 😍😍

        Handy that your carers can do the changes. xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
        .
        ​

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          #5
          would a catheter be better than these conveen things?
          when i can think of something profound i will update this.

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            #6
            I think Conveens are best for occasional use, an indwelling or suprapubic catheter is best for full-time catheterisation. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
            .
            ​

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              #7
              My word Matthew, Things are coming together for you lately .Glad you are getting good quality sleep, the catheter is helping and now you just need a housing offer.
              Best wishes
              Mary

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                #8
                I'm not keen on putting them on. I'm sooo out of practice. 😱 Need some special kinds of fruit to tryout on.
                when i can think of something profound i will update this.

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                  #9
                  What's a concern? πŸ€”
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    You don't want to know. 🀀 Ellie didn't warn me. She got her own back in a round about way. I chickened out last night and I'm gonna have to do it tonight because conveen lady phoning again tomorrow. Bowel testing kit arrived. 😨 it just gets better.
                    when i can think of something profound i will update this.

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                      #11
                      denise Thank you, thank you, thank you - you don't know how much I needed that laugh πŸ₯°πŸ₯°πŸ₯°πŸ₯°
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                      .
                      ​

                      Comment


                        #12
                        I'm glad you're enjoying this Ellie. Pants. Everything is pants or what's in them. πŸ€£πŸ˜‚πŸ˜‰
                        when i can think of something profound i will update this.

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                          #13
                          Well I did it! A success! Had to cut it off with scissors. Nothing like trying to read the instructions while holding a bag of pee. I have tallents I never knew existed. πŸ˜†
                          when i can think of something profound i will update this.

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                            #14
                            Another accomplishment πŸ‘πŸ‘

                            And the verdict on the device? Held fluid without leaking, comfy on Stephen? xx
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                            .
                            ​

                            Comment


                              #15
                              Yes good idea. Bit weird putting it on. Didn't leak. He didnt complain. Bit worried as a stand wasn't provided and the bed's quite high. I was dubious about him moving about and pulling it off but when it came to taking it off i can see its not easy to remove. Just need to be careful with the scissors 😈
                              when i can think of something profound i will update this.

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