Theyโve actually finished my lift today ๐๐๐ Iโve had a quick go ๐ Iโm not too good today got a infection in my peg site so just started antibiotics ๐ข but when I feel better Iโll be getting some practice in ๐
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Great news about the lift Janette ๐๐, not so great about the infection ๐ช
Take it easy now and get better.
Big, big hug and smoochie ๐ค๐โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โ
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I'm jealous I'd love a lift here. Would be wonderful. Hope you get your peg sorted and get to have fun riding up and down.
does it sound like a lift? I can't imagine it. Sounds brilliant - well we have a lift in our house - sounds very posh. ๐when i can think of something profound i will update this.
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No harm to take some, especially as you've been feeling off form of late. Yakult, kefir or probiotics down the tube or orally or good live yogurt, only if you want to, no worries if you don't. Antibiotics kill the good bacteria too, probiotics just hurry on their replenishment. xxโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
โ
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all sounding very positive.
my day started early stephen had kicked all his bedding off and his conveen tube. coffee at 4am. went back to sleep. bucketing with rain. not a cat insight. feeding pump decided not to work. many attempts. took it all apart but i couldnt see anything wrong with it. dumped the first feed and started again. still wouldnt work then suddenly its going. electric guy came to read the meter but i dont know where its hiding. had a look at attendance allowance form and gave up. registered with local council as a carer. iceland delivery came but realise i forgot to order bread. so a walk to the shop.when i can think of something profound i will update this.
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