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    Meltdown

    I had a meltdown last night after the lift going in and the bed going back upstairs everything was all over the place and nothing was in the right place 🤦🏼‍♀️ Because we were short of room while it was sorted we decided to use the travel wheelchair instead of the powerchair while Phil was asking me where I wanted stuff, but then he couldn’t get me out of it 😱 20 minutes of struggling we finally managed it.
    I just couldn’t cope probably because I wasn’t feeling well in the first place but ended up blubbering 😭 and I never cry.
    my daughter has been to help today so things are a lot better now 🙏🏻🥴
    Janette x

    #2
    Oh Janette, having a meltdown is perfectly understandable and allowed !

    Sometimes its good to let everything out and you have had such alot to cope with in a short space of time. I've read your posts in admiration.
    I'm like you in that I don't cry very often but when I do I really do.😭🤣

    I'm glad your feeling a little better today and hope it continues,
    Love and hugs to you,❤
    Debbie x

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      #3
      Thanks Deb, it all got on top of me and it’s not like me, it was nice today spending time with youngest daughter helping me to clear some stuff out ❤️ Love to you Janette x
      Janette x

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        #4
        Oh Janette, I also understand why that happened and the meltdown was appropriate....

        After so long stuck downstairs, with so much hassle about the lift, everything should have been just perfect for you - it must have just taking the wind from your sails 😥😥😥 And then the transfer, I'll not revisit that 😏

        I'm glad you had a nice day with your DD.

        Tonight's another night 🤞🤞🤞

        Hugs and smoochies 🤗🤗🤗😘😘😘
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          I fully understand and applaude your meltdown. 👍🤗😍💗xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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            #6
            It just gets worse folks,just had fall I had to use the community link alert to come and get me up 🤦🏼‍♀️ I’d slipped while trying to get to the commode but all my weight was crushing my legs & feet Phil & my son couldn’t get me up but managed to lie me down on my side while we waited for help, it took about 15/20 minutes then the same to get me up.
            I’m ok now but I think I’ll ache a bit tomorrow 🥴 Janette x
            Janette x

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              #7
              Oh Janette, poor, poor you!! Has somone got a Voodoo doll of you?

              Take it easy tonight ( 🍷🍷) and hopefully you won't be too sore tomorrow.

              Love Ellie xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                I know I was thinking the same thing 🤦🏼‍♀️ I wished they would bugger off and pick on someone else 🤨 Going to bed soon tomorrow’s another day 🤗👍😘
                Janette x

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                  #9
                  Nettie oh how awful to have a fall...sounds exhausting....thankfully no broken bones. 🙏🤗
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                    #10
                    LindaB thanks yes luckily nothing broken started aching already 🥺 Janette x
                    Janette x

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                      #11
                      Oh no Janette... how awful ! Im so sorry and hope you don't feel too bad tomorrow.

                      More love and hugs to you tonight 🤗 ❤.
                      Debbie xx

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                        #12
                        Oh Janette, what a difficult couple of days you’ve had. I hope that you have a better weekend. Love ❤️ and hugs 🤗 Lynne x
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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                          #13
                          Thanks Lynne I’m ok just a bit bruised & aching 👍Janette x
                          Janette x

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                            #14
                            Oh Nettie - poor you. I had a fall just like that when my legs were going in November. I was trapped between the toilet and the wheelchair. Boy, did I yell!!!! My husband and daughter couldn’t move me. Finally got me lying down and very luckily we had just had a hoist fitted so they could get me up in that. (Think I’d still be there otherwise!) If its not one thing it’s another. A good cry does indeed help and if you are not a regular crier then when the tears come its like a dam bursting. It can be very cathartic. Enjoy your lift and being able to go upstairs. Xxx

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                              #15
                              Sarahw Ow Sarah, that fall sounded painful...

                              Originally posted by Sarahw View Post
                              If its not one thing it’s another.
                              Spot on - I think everybody here feels like that 🙄 😘
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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