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    #16
    Janette - Understand meltdown. What don't understand is why we don't have more often. xx

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      #17
      I’m tons better today folks hopefully everything is in the right place now πŸ‘ hoping for a better nights sleep tonight 😴 thanks to you all Janette xx
      Janette x

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        #18
        Hi Janette, you have had so much to cope with, I really understand how that could happen, and when you are under stress lots of other things are in danger of going wrong. Hope it's really worth it in the end , glad your daughter has helped, sleep well! Love and hugs from me too x
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #19
          Originally posted by Nettie View Post
          I’m tons better today folks
          Thrilled to hear this Janette.

          Let's hope there are no more pins for that Voodoo doll 🀞🀞 πŸ€—πŸ˜˜

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            #20
            Thanks girls 😘😘
            Janette x

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