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bulbar onset MND sore neck just underneath my chin

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    bulbar onset MND sore neck just underneath my chin

    Keep mentioning this to various consultants and health professionals, but no-one seems interested. It feels like a glandular thing but Ive had it for quite a few weeks now and most uncomfortable. SALT said it was probably voice strain but I havent really spoken that much over the past weeks, trying to keep chatting to a minimum so as not to exhaust myself. One of the horrors of MND.

    Has anyone experienced this? Is it connected with MND or something else separate. Tried gargling with salty water and drinking pineapple juice but Im a bit reluctant to see my GP as one of the medical professionals said some GPs would never come across MND in their lifetimes as it is so rare, so I dont know what they would suggest. Im not so sure ?


    #2
    Originally posted by Worsleybird View Post
    It feels like a glandular thing but Ive had it for quite a few weeks now and most uncomfortable.
    Are your glands swollen/hard/sore to the touch, as if you have an infection? If not, can you pinpoint the sore area to a muscle or is it more internal?

    Originally posted by Worsleybird View Post
    SALT said it was probably voice strain
    🤔🙄😲 Never heard anything so ridiculous in my life, but I may be very wrong... xx

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Feels more internal Ellie, no evidence of swelling or abnormality. Area is just between chin and neck to the left hand side. Wondering whether to take ibuprofen but not a big meds taker to be honest, apart from Riluzole.

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        #4
        I'm so sorry that not one medic was interested in finding a cause for your discomfort...

        Maybe you strained a muscle? Whatever the reason, there's no need to put up with any more than you have to, so you could take ibuprofen for a couple of days to see if it addresses the pain.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Sorry i've never experienced anything of that description. Regards

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            #6
            Try Baclofen or co codomol if ibuprofen not working.
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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              #7
              Sorry that noone is taking this seriously ... life is hard enough without unexplained pain.

              Just a thought ... I often wake with a sore neck and I think its a result of not being able to move enough in the night. When I mentioned this at clinic they arranged a blood test to rule out thyroid problems..it did but they said just because i have MND doesn't mean there are no other issues. I thanked them profusely for this cheery thought.

              If you need painkillers for a few days I wouldn't worry at all. We need to be as comfortable as possible,
              Love Debbie x

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                #8
                Thanks all, so horribly frightened thinking is that another symptom manifesting itself that I cant even bring myself to take pain killers. Cant even rely on wine now in the evening. Will bite the bullet and slug a few painkillers down , tks all for your suggestions

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                  #9
                  I’ve been experiencing a similar sounding stiff/sore neck for the last few weeks. It’s a muscular problem and I’m having physio. It’s easing slowly and I’m hoping it’s not mnd related and heading for a collar.
                  Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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                    #10
                    It can be arthritis or stress, be careful of ibuprofen not great for the stomach .

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                      #11
                      Possible MND, baclofen may help with it if you see GP. You are just down the road I think.

                      I tried baclofen but ended up not taking it and went through the pain.
                      Copyright Graham

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                        #12
                        Worsleybird can you shift yourself when you sleep?it sounds like neck ache from lying in the wrong position a neck pillow (memory foam)might help !

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                          #13
                          Worsleybird my throat has become sore when I swallow. I find a dry mouth spray helps (probably lubricating it). My swallow is getting more difficult and voice weaker, all part of the process, I guess.

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                            #14
                            aussiegirl try pineapple,mango,or papaya pure fruit juice ,they are all for healing the gastrointestinal tract from mouth to the other end

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                              #15
                              Originally posted by Streetwise View Post
                              aussiegirl try pineapple,mango,or papaya pure fruit juice ,they are all for healing the gastrointestinal tract from mouth to the other end
                              Thanks, I will

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