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bulbar onset MND sore neck just underneath my chin

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    #16
    aussiegirl Given that your swallow is getting "more difficult", be aware that both pineapple and papaya juice thin secretions, meaning they might be problematic - go softly with it until you know the effects. Also, keep very well hydrated. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #17
      Originally posted by aussiegirl View Post
      my throat has become sore when I swallow. My swallow is getting more difficult and voice weaker,
      Have you an SLT who can assess you, give you advice and recommendations? xx

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #18
        Ask for an Ultra Sound of your thyroid. Thyroid is down by the bump in your neck on both sides and behind it (adams apple). If you have goiters, it can cause pain and trouble swallowing. The thyroid can become enlarged, push your thorax (throat) to the side, and make swallowing painful. If it is not that, the Ultra Sound should rule out anything else that may be going on.

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          #19
          Originally posted by Ellie View Post
          aussiegirl Given that your swallow is getting "more difficult", be aware that both pineapple and papaya juice thin secretions, meaning they might be problematic - go softly with it until you know the effects. Also, keep very well hydrated. xx
          Thanks for that Ellie, I'll tread carefully

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