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    #16
    Interesting Matt. Romans threw deformed babies on the trash heap, within living memory the Irish put babies out of wedlock in the sewers too!

    I think just before you joined, a forum member implied that we with MND were all suffering bad karma and could not understand why her husband had MND, "...he has only ever been good"! Obviously I reacted but then took criticism from other forum members!!

    Yes, I agree that some think our lives are cheap and we complain too much and that we are even bitter!

    It is a matter of education and going through MND is a start.
    Copyright Graham

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      #17
      I wish I'd joined earlier mate. 😉😆👍🤗xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #18
        Graham - I have never complained about any thread or post. I trust the MNDA Administrator will confirm that.
        Last edited by John D; 25 August 2021, 08:24.
        Diagnosed June 2019. Bulbar palsy. Lost voice. Using PEG fitted April 2021 alongside eating normally albeit slowly and messily at times.

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          #19
          Originally posted by Graham
          Dear John,

          I was offended by your comments previously about my 700 day stay in Salford hospital. I am entitled to be "bitter".

          When you are bed bound and cannot talk, care becomes very problematic and when some auxiliaries really can't be bothered to provide the level of care necessary in the frenetic environment, then life becomes unbearable.

          I have now learned that you have complained to the MNDA about this thread!

          I expect and demand a public apology from you.
          Hi Graham,

          We can confirm it wasn't John D and we hope you will issue John an apology.


          Thanks

          Forum Admin
          Our working hours are Monday to Friday 8:30am until 5pm

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            #20
            This thread has now been locked due to several comments that have been made which break our Forum Guidelines.

            Please can we urge all Forum users to please refresh themselves on the guidelines https://forum.mndassociation.org/forum-guidelines. We will be removing any comments which break our guidelines and/or upset other members.
            Our working hours are Monday to Friday 8:30am until 5pm

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