Announcement

Collapse
No announcement yet.

Returning to the cradle

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Returning to the cradle

    Consider this: With MND/ASL grown up people return to babies. We rely on others to wash, cloth, feed and move us around. We cannot form words and just make random noises. Folk comment on our sweet smile while wondering what we are thinking. When we get we get frustrated or upset no one knows why. Some of us even wear nappies and isn't a PEG just like a baby's bottle? Just a thought. πŸ‘πŸ’—πŸ˜šπŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Too true Mathew xx
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    Comment


      #3
      Originally posted by matthew55 View Post
      Consider this: With MND/ASL grown up people return to babies.
      🀨 I have late stage ALS and am totally dependent on others, but in no way have I returned to being a baby.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        #4
        Somehow I just knew you would say something like that. πŸ˜‰πŸ˜šπŸ˜˜πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

        Comment


          #5
          You know me so well. 😍😍😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

          Comment


            #6
            Well said Ellie and as you say you are in late stage of MND/ALS and are totally dependent on others.Inspirational and so glad you don’t compare yourself to being a baby.

            Best wishes
            Mary

            Comment


              #7
              Yes I feel I have got to babywalker stage with my rollator, and my grandson is learning words as I lose them, so we both use a lot of gestures. Quite a challenge trying to read him a story, but worth the effort! Yes to hang on to our adult selves and dignity through all this x
              Diagnosed July 2020, ALS bulbar onset.

              Comment

              Working...
              X