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    Anxiety

    The reason I sound flippant when anxiety or stress is mentioned in reference to discontinuing NIV is two fold: Firstly I
    have experienced more deaths than many including my daughter, both parents, all my grandparents and even my best friend. Which goes some way to explain my second reason and that is death holds nothing on me. Every time I stop breathing I am hoping it's the end. Does this make me lucky or sad? Personally I don't care what anyone else thinks because it's my life at the end of the day. Have a great evening. 👍😁🍷😍xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    We've had a grand life but it ain't over yet Matt! The fat Lady has still to sing!!

    Which reminds me of my fave film...

    https://www.youtube.com/watch?v=vXOld2UVO3I

    Fancy a cigar mate...
    Copyright Graham

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      #3
      I agree she is still singing but it's no longer a song I care to listen to. It's about quality not quantity my friend. 😉😁😆🤗xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        Hugs Matthew x
        Diagnosed July 2020, ALS bulbar onset.

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          #5
          Anxiety is a strange thing. Stephen gets anxious if I mention a hospital visit or at one time when we used to go shopping, a trip to the shops would start him off. He'd start walking backwards and forwards. Asking questions and making me annoyed and anxious. Which made him worse. Got to the stage where i wouldn't tell him anything until we are about to leave the house.
          Think sometimes we are anxious and we don't even know it or why.

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