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    It's too quiet

    I know we are missing a couple of heavy hitters but things haven't picked up since the weekend and it's a little troubling.
    Healthy banter helps us through a day and that's exactly what living with means. So come on people get posting. 👍😁🤗😍xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

    #2
    Hi Mathew. I’ve been up since 7.30 but too weary for humour. But I wanted to let you know that I’m here. Breakfast at 11.30 because Riluzone at 10.30. Watched Homes Under The Hammer, and now back to my Kindle book.

    I hope that you have a good day. Hugs, Lynne 🤗 🤗 x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

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      #3
      Have a super day sister 😁🤗😘😍xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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        #4
        Hi Matthew, I noticed not many new topics and does seem quieter on here lately.
        Have a good day.
        Mary

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          #5
          Have a good day Matthew x
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            #6
            Hi Matthew,

            I agree it has been a little quiet on here... sometimes it happens like that but we're all here for each other. 😘❤🤗

            I tend not to post if im having a bad or weary day which is ridiculous really as its then we need support most.

            Hope your day is going well.. You must be made up with your teams results so far 😊⚽️🥅🎉

            Love Debbie x

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              #7
              Good and bad days are totally normal for us. Shame it's a marathon and not a sprint. 😉🤗😘😍xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                #8
                I'm sorta here. Putting some slap on so I don't scare anyone.

                I'm having good and bad days. The sun really helps. Today looks lovely but a trip to the hospital will take up a lot of time. 😕
                when i can think of something profound i will update this.

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