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    #16
    Well done Polly.Like you said the complexity of the symptoms and care needs needs consideration.
    Its the same for people with dementia who have an application for CHC they often get turned down.
    Always best to appeal a negative decision.
    Best wishes
    Mary

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      #17
      Yes well done, Polly, having the strength to appeal when having to cope with so much x
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        #18
        Well done polly. Have to say I've found the most basic stuff a challenge so hearing that someone has fought back and won something like that is a brilliant result and just shows we shouldn't give in. 😊
        when i can think of something profound i will update this.

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