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    My experience

    One thing you notice is just how loud your stomach can be. It can mean many things and you quickly work out the code. I think it's due to general weight loss and wastage. Happy Days. πŸ·πŸ˜πŸ€—πŸ˜†xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    My tummy has always been annoying. Always had a problem but no idea why. I used to love going to the library. I've always loved books and would go every week and and took home as many books as possible. My stomach, I can only think didn't like the library, and would keep up a commentary the whole time I was there. I was convinced one day like the film alien, something would come bursting out of my stomach. Probably wait till I was in the library and everyone would tell me to keep quiet. 🀀

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      #3
      Good morning Matthew,
      I have had throat gurgling noises for a few months which is linked to my voice becoming weaker.Never sure if the noises are audible to others😁
      Happy Bank Holiday Monday
      Best wishes
      Mary

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        #4
        I make some random noises at times....even surprises me...I imagine it's what a broken church organ sounds like with the wind blowing through the pipes. πŸ˜…πŸ™„

        ​​​​
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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          #5
          My most embarrassing thing is farting. I just can't keep it in! πŸ˜πŸ€—πŸ˜†πŸ˜˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            It's good to let it out but not sure others close by would agree πŸ€£πŸ˜ƒπŸ˜„πŸ˜

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              #7
              matthew55

              Better out than in

              As I say to my husband,

              often

              off to look for the clothes pegs

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                #8
                Originally posted by DeeH View Post
                off to look for the clothes pegs
                Or a cork, Donna xx

                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  Stephen just believes in sharing 🀭

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                    #10
                    It's good to share πŸ˜‰πŸ˜πŸ˜†πŸ˜˜xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      No tummy noises so far is that due to using a PEG?

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                        #12
                        I have a PEG and noise πŸ‘πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          #13
                          Originally posted by bromleycross View Post
                          No tummy noises so far is that due to using a PEG?
                          I don't get tummy noises either Jane, it's not universal.

                          I had my (button) feeding tube changed yesterday and when my husband removed the tube, a big gush of noisy air came out of my empty stomach 😁😁 xx
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #14
                            Vesuvius formly known as Ellie πŸ˜‚πŸ€£πŸ˜ƒ

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