One thing you notice is just how loud your stomach can be. It can mean many things and you quickly work out the code. I think it's due to general weight loss and wastage. Happy Days. π·ππ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
My tummy has always been annoying. Always had a problem but no idea why. I used to love going to the library. I've always loved books and would go every week and and took home as many books as possible. My stomach, I can only think didn't like the library, and would keep up a commentary the whole time I was there. I was convinced one day like the film alien, something would come bursting out of my stomach. Probably wait till I was in the library and everyone would tell me to keep quiet. π€€when i can think of something profound i will update this. -
Good morning Matthew,
I have had throat gurgling noises for a few months which is linked to my voice becoming weaker.Never sure if the noises are audible to othersπ
Happy Bank Holiday Monday
Best wishes
MaryComment
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I make some random noises at times....even surprises me...I imagine it's what a broken church organ sounds like with the wind blowing through the pipes. π π
ββββInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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My most embarrassing thing is farting. I just can't keep it in! ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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It's good to let it out but not sure others close by would agree π€£πππ
when i can think of something profound i will update this.Comment
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Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Stephen just believes in sharing π€when i can think of something profound i will update this.Comment
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It's good to share ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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No tummy noises so far is that due to using a PEG?Comment
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I have a PEG and noise ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I don't get tummy noises either Jane, it's not universal.Originally posted by bromleycross View Post
I had my (button) feeding tube changed yesterday and when my husband removed the tube, a big gush of noisy air came out of my empty stomach ππ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Vesuvius formly known as Ellie ππ€£πwhen i can think of something profound i will update this.Comment
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