I get a situation where I literally can't breathe in or out. I have to get to my suction machine fast and what comes out of the back of my throat is very thick, smelly smelly white phlegm. This is with me taking Carbocisteine. Just saying. π€πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Hi Mathew. I know nothing about suction machines, but at least it works for you despite the smell. Maybe have something to spray or a nice fragrant plant nearby to mask the odour. Love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
I wonder if also using a saline nebuliser would help you Matthew? Once or twice per day for 10-15mins might work wonders. π€π€π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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